剧情简介
The film chronicles the life of author Thorvald Steen, who has facioscapulohumeral muscular dystrophy; a rare waste disorder that gradually and irreversibly paralyzes his body. The disease, however, has never stopped Thorvald. He is still an active public debater, freedom of speech advocate, author, and cultural communicator, although his ski jumping days are over. Through Thor...
观众心声
是难得 “下饭” 佳作，轻松诙谐风格、紧凑剧情，闲暇观影驱散疲惫，带来愉悦好心情，解压又惬意。
2026-04-29 有用 63
虽然影片在某些方面存在不足，但对于喜欢这类题材的观众来说还是值得一看的。
2026-03-30 有用 168
遗憾的是，剧情架构稍显松散，多条线索并行时衔接不够紧密，致使故事连贯性受损，观影时偶尔会有 “断档” 之感。
2026-08-20 有用 296
演员对角色诠释入木三分，从细微肢体动作到表情神态变化，精准传递角色内心情绪，让人沉浸角色命运，感同身受。
2026-04-22 有用 81
这记录片节奏太慢，剧情拖沓，看得我直打瞌睡，浪费时间！
2026-06-09 有用 177